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A time to live and a time to die : heterotopian spatialities and temporalities in a pediatric palliative care team

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DAVIS, Christine S. | SNIDER, Meghan J. | KING, Lynná | SHUKRAFT, Allison | SONDA, James D. | HICKS, Laurie | IRVIN, Lauren

The death of a child creates especially poignant feelings and extreme stress, distress, and devastation for family members and healthcare providers. In addition, serious or long-term illness forces a reconstruction of our experiences with time and space. In this paper, we report on a long-term ethnographic study of a Pediatric Palliative Care Team (PPCT). Using the concepts of spatiality and temporality; Deleuze's concepts of smooth and striated spaces; Innis's concepts of space and time biases; Foucault's concept of heterotopian space-places with multiple layers of meaning; and a related concept of heterokairoi-moments in time with multiple possibilities-we consider how the PPCT constructs and reconstructs meaning in the midst of chaos, ethical dilemmas, and heartbreaking choices.

http://dx.doi.org/10.1080/10410236.2018.1443262

Voir la revue «Health communication»

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