Afficher la couverture 'Decision aids available for parents making end-of-life or palliative care decisions for children : a scoping review: decision aids | MEDEIROS, Christina' en grand format
/5

0 avis

Decision aids available for parents making end-of-life or palliative care decisions for children : a scoping review: decision aids

Article indépendant

MEDEIROS, Christina | BUCKLEY, Laura | METCALFE, Kelly | NARAYANAN, Unni G | WIDGER, Kimberley

Aim: To identify and assess the quality of decision aids that align the decision, values and information provided for parents making end-of-life or palliative care decisions for children with life-threatening conditions. Methods: Six databases and the grey literature were searched in December 2018. Two reviewers independently reviewed database citations, and one reviewed grey literature citations. Citation chaining via Scopus was conducted. Quality was assessed using IPDAS Collaboration Criteria. Results: After reviewing 18 671 database citations and 10 988 grey literature citations, 18 citations describing 11 decision aids remained. Decision aids targeted premature infants, children requiring airway management, children with cancer and children with scoliosis. Three aids underwent testing beyond initial development. Quality scores averaged 27 of 50 points. Conclusions: There are few high-quality decision aids available for use and a lack evidence of widespread clinical use. Additional research is needed to support systematic development and the use of decision aids with families.

http://dx.doi.org/10.1111/jpc.14885

Voir la revue «Journal of paediatrics and child health»

Autres numéros de la revue «Journal of paediatrics and child health»

Consulter en ligne

Suggestions

Du même auteur

Decision aids available for parents making en...

Article indépendant | MEDEIROS, Christina | Journal of paediatrics and child health

Aim: To identify and assess the quality of decision aids that align the decision, values and information provided for parents making end-of-life or palliative care decisions for children with life-threatening conditions. Methods: ...

Indicators used to assess the impact of speci...

Article | WIDGER, Kimberley | JOURNAL OF PALLIATIVE MEDICINE | n°2 | vol.22

BACKGROUND: Specialized pediatric palliative care programs aim to improve quality of life and ease distress of patients and their families across the illness trajectory. These programs require further development, which should be ...

Indicators used to assess the impact of speci...

Article indépendant | WIDGER, Kimberley | JOURNAL OF PALLIATIVE MEDICINE | n°2 | vol.22

BACKGROUND: Specialized pediatric palliative care programs aim to improve quality of life and ease distress of patients and their families across the illness trajectory. These programs require further development, which should be ...

De la même série

Multidrug-resistant organisms in paediatric p...

Article indépendant | SCHMIDT, Pia | Journal of paediatrics and child health | n°8 | vol.58

Aim: Multidrug-resistant organisms (MDRO) deserve special attention in health-care facilities for children with life-limiting conditions because these children have an increased risk for colonisation. To avoid nosocomial transmiss...

Health-care workers' understanding of and bar...

Article indépendant | JESSOP, S. | Journal of paediatrics and child health | n°8 | vol.58

Aim: To identify barriers in the understanding and provision of optimal palliative care to Aboriginal children with cancer by health-care staff, with the aim to support education and training that highlights the importance of cult...

The last 2 years of life for children with se...

Article indépendant | VEMURI, Sidharth | Journal of paediatrics and child health

AIM: To describe the clinical course for children with severe physical disability (SPD) in the 2 years prior to their death and to identify whether these children had palliative care involvement and advance care planning prior to ...

Treatment limitation and advance planning : h...

Article indépendant | AUDIGE, Manon | Journal of paediatrics and child health

Aim: To examine paediatric deaths following withdrawal or withholding of medical treatment (WWMT) from a hospital-wide perspective and identify changes over a 10 year period. Methods: A retrospective review of medical records was ...

Decision aids available for parents making en...

Article indépendant | MEDEIROS, Christina | Journal of paediatrics and child health

Aim: To identify and assess the quality of decision aids that align the decision, values and information provided for parents making end-of-life or palliative care decisions for children with life-threatening conditions. Methods: ...

Chargement des enrichissements...