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Right brain : withholding treatment from a child with an epileptic encephalomyopathy

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ROTHSTEIN, Aaron | LEWIS, Ariane

The case of Charlie Gard, an infant who was hospitalized in England due to a mitochondrial DNA depletion syndrome that led to an epileptic encephalomyopathy, was highly publicized. Though Charlie's parents lobbied for him to receive experimental nucleoside replacement therapy as a desperate effort to save him, this request was denied, and after a lengthy legal battle, he died in late July 2017. We discuss the ethical considerations and consequences of this case.

http://n.neurology.org/content/neurology/90/18/857.full.pdf

Voir la revue «Neurology, 90»

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