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Quality predictors of parental satisfaction after birth of infants with life-limiting conditions

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WOOL, Charlotte | KAIN, Victoria J. | MENDES, Joana | CARTER, Brian S.

Aim: This study examines parental satisfaction with care received in the context of a life-limiting fetal diagnosis and subsequent birth. Methods: Survey methods were utilized to embed the Quality Indicators (QI) and Parental Satisfaction of Perinatal Palliative Care Instrument in a survey: "The Voice of Parents". Results: The web-based survey had a final sample of N=405 parent responders. Overall, parents reported satisfaction with care (80.2%; n=393). Parents satisfied with care reported higher agreement with quality indicator items for all subscales. In total, 17 items from the 41-item instrument revealed the ability to predict higher parental satisfaction when particular QI are reported. Conclusion: This study has led to credible insights into parental satisfaction with care given after the birth of an infant with a life-limiting condition. The findings contribute to development of a model with a good fit in ascertaining the importance of compassion, unhurried provider-patient communication and bereavement interventions. This article is protected by copyright. All rights reserved.

http://dx.doi.org/10.1111/apa.13980

Voir la revue «Acta paediatrica»

Autres numéros de la revue «Acta paediatrica»

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