Mesothelioma palliative care needs : supporting patients and families with new research-based resources

Article

HARGREAVES, Sarah | GARDINER, Clare | TOD, Angela | DARLISON, Liz

BACKGROUND: Mesothelioma is a rare cancer without cure. Clinical guidelines recommend the timely provision of palliative/supportive care; however, a new study identified barriers to achieving this ambition. OBJECTIVE: The study aimed to explore palliative care needs and the role of Mesothelioma Clinical Nurse Specialists (MCNSs); and to develop resources to address study findings. METHODS: The mixed-methods study included a literature review, focus groups, interviews and surveys. RESULTS: The study highlighted the important role of the MCNSs in palliative care and the need to: address disjointed care; improve support for families; and explain the benefits of palliative care for patients/families. A co-production approach developed an animation for patients/families to demystify palliative care and explain the benefits of early-stage engagement; and an infographic targeted at community and primary care professionals. Recommendations for community nursing practice are described.

http://dx.doi.org/10.12968/bjcn.2023.28.5.248

Voir la revue «British journal of community nursing, 28»

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