Understanding aims, successes and challenges of palliative care and homelessness initiatives across the UK : an exploratory study

Article indépendant

CROOKS, Jodie | FLEMMING, Kate | SHULMAN, Caroline | HUDSON, Briony

BACKGROUND: Due to the recognition that people experiencing homelessness (PEH) often die young and unsupported, a growing number of initiatives focusing on palliative care and homelessness are emerging across the UK. However, there has been no systematic exploration of the nature and landscape of this work. AIMS: To understand the range, aims, successes and challenges of current initiatives within the field of palliative care and homelessness in the UK, by exploring existing projects and initiatives. METHOD: An online survey was distributed to members of an Extension for Community Healthcare Outcomes network focusing on palliative care and homelessness for a mixed professional audience. The survey collated the aims, successes and challenges of initiatives aiming to improve palliative care for PEH. Responses were summarised using descriptive statistics, and free-text responses were analysed using thematic analysis. RESULTS: 162 professionals completed the survey. Of these, 62% reported involvement in at least one palliative care and homelessness initiative. Initiatives focused on service delivery (59%), training (28%) and research (28%). Themes for success included improved service engagement, relationship formation, housing provision, honouring end-of-life wishes, upskilling staff and enabling safe hospital discharge. The main challenges included stigma around substance misuse, securing funding, staff capacity, equipment and facilities, and engaging communities. CONCLUSION: The number and scope of initiatives aiming to support PEH with advanced ill health and palliative care needs across the UK is growing, with a range of professionals engaging in the field. Future research may benefit from exploring initiatives in more detail to understand the specific drivers of impact on PEH and the staff and services supporting them.

http://dx.doi.org/10.1136/bmjopen-2023-075498

Voir la revue «BMJ Open, 14»

Autres numéros de la revue «BMJ Open»

Consulter en ligne

Suggestions

Du même auteur

Opportunities and challenges in involving peo...

Article | CROOKS, Jodie | Research involvement and engagement | n°1 | vol.9

BACKGROUND: Co-research is a collaborative approach to research, promoting involvement of individuals with lived experience of a research area as experts by experience. Recently, the importance of co-research within palliative and...

Opportunities and challenges in involving peo...

Article indépendant | CROOKS, Jodie | Research involvement and engagement | n°1 | vol.9

BACKGROUND: Co-research is a collaborative approach to research, promoting involvement of individuals with lived experience of a research area as experts by experience. Recently, the importance of co-research within palliative and...

Involving people with lived experience of hom...

Article indépendant | CROOKS, Jodie | Research involvement and engagement | n°1 | vol.10

Background: Co-production of research aims to include people with lived experience of a phenomena throughout the research process. People experiencing homelessness often experience advance ill-health at a young age, yet access pal...

De la même série

Identifying specific subgroups of older patie...

Article indépendant | VISADE, Fabien | BMJ Open | n°1 | vol.15

OBJECTIVE: To identify specific subgroups of older patients at risk of repeated hospital readmissions and death. DESIGN: Prospective, multicentre, DAMAGE (Patient Outcomes After Hospitalization in Acute Geriatric Unit) cohort of a...

Top 10 palliative care research priorities in...

Article indépendant | BARBARET, Cécile | BMJ Open | n°1 | vol.15

INTRODUCTION: As one means to avoid waste in research investment, involving patients as full partners in research has become increasingly frequent. There is clearly a low level of investment in palliative care research. Following ...

Evaluation of electronic palliative care coor...

Article indépendant | ALIED, Marcel | BMJ Open | n°3 | vol.15

INTRODUCTION: Electronic Palliative Care Coordination Systems (EPaCCS) are electronic registers that aim to facilitate documentation and sharing of up-to-date information about patients' end-of-life preferences and plans for care ...

Support needs and preferences for people with...

Article indépendant | CUBIS, Lee | BMJ Open | n°4 | vol.15

INTRODUCTION: People with multiple sclerosis (MS) live with a progressive condition that can result in complex disability support needs. Consequently, they may require specialised care and assistive technology to maintain independ...

Understanding aims, successes and challenges ...

Article indépendant | CROOKS, Jodie | BMJ Open | n°1 | vol.14

BACKGROUND: Due to the recognition that people experiencing homelessness (PEH) often die young and unsupported, a growing number of initiatives focusing on palliative care and homelessness are emerging across the UK. However, ther...

Chargement des enrichissements...