Developing the understanding palliative care module : a quality improvement initiative incorporating public, patient, and family caregiver perspectives

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BIONDO, Patricia | SHANTZ, Mary-Ann | ZHENG, Yuanjie Bill | MANNING, Miranda | KASHUBA, Louise

Improving public awareness of palliative care is crucial for improving access to, and uptake of, palliative care, which has demonstrated benefits for patients and health systems. However, there is a lack of engaging, accessible educational palliative care resources designed for public audiences. As part of a larger quality improvement initiative to strengthen awareness of palliative care, we developed "Understanding Palliative Care"-an innovative, online educational module incorporating best practices for defining and promoting palliative care to a public audience. An expert working group with representation from nursing, medicine, social work, instructional design, and care navigation advised on the development of the module. Incorporating the perspectives of Albertans with lived palliative care experience was deemed essential by the working group. We identified three Albertans (one patient and two family caregivers) of diverse ages and cultural backgrounds who had personally benefitted from palliative care and consented to record virtual interviews. We incorporated multiple interview segments into the module that highlight the physical, emotional, social, and spiritual support provided by palliative care. Finally, a panel of thirteen public volunteers provided feedback on the content, design, and navigation of the draft module. The Understanding Palliative Care module fills an important gap in Alberta, providing a free, online, evidence-based, and engaging educational tool to improve public awareness and understanding of palliative care.

http://dx.doi.org/10.3390/curroncol32040221

Voir la revue «Current oncology, 32»

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