At a loss : patient deaths and clinical research coordinators

Article indépendant

DEARY, Emma C. | DASKALAKIS, Elizabeth | ABRAHM, Janet L. | MORRIS, Sue E. | AMONOO, Hermioni L.

As clinical research coordinators (CRCs) working on health outcomes research in patients with hematologic malignancies, we frequently navigate a patient's chart to coordinate study appointments and collect clinical information. When opening a patient's electronic health record, a snapshot immediately appears on the screen with the patient's medical information: demographics, problem list, medical history, allergies, medications, and so on. However, there are times when the chart does not open immediately, and our stomachs drop. A small gray pop-up box that we know all too well reads: “You are opening the chart of [patient's name], who is deceased. Date of death: [date].” [Début de l'article]

http://dx.doi.org/10.1200/JCO.23.00040

Voir la revue «Journal of clinical oncology, 41»

Autres numéros de la revue «Journal of clinical oncology»

Consulter en ligne

Suggestions

Du même auteur

At a loss : patient deaths and clinical resea...

Article indépendant | DEARY, Emma C. | Journal of clinical oncology | n°16 | vol.41

As clinical research coordinators (CRCs) working on health outcomes research in patients with hematologic malignancies, we frequently navigate a patient's chart to coordinate study appointments and collect clinical information. Wh...

The physician's role in responding to existen...

Article | AMONOO, Hermioni L. | JOURNAL OF PALLIATIVE CARE | n°1 | vol.35

Existential suffering is commonly experienced by patients with serious medical illnesses despite the advances in the treatment of physical and psychological symptoms that often accompany incurable diseases. Palliative care (PC) cl...

The physician's role in responding to existen...

Article indépendant | AMONOO, Hermioni L. | JOURNAL OF PALLIATIVE CARE | n°1 | vol.35

Existential suffering is commonly experienced by patients with serious medical illnesses despite the advances in the treatment of physical and psychological symptoms that often accompany incurable diseases. Palliative care (PC) cl...

De la même série

Precision palliative care as a pragmatic solu...

Article indépendant | SEDHOM, Ramy | Journal of clinical oncology | n°16 | vol.41

ASCO and National Comprehensive Cancer Network guidelines recommend all patients with advanced cancer receive early palliative care (PC), within 8 weeks of diagnosis,1,2 on the basis of evidence that concurrent care improves patie...

At a loss : patient deaths and clinical resea...

Article indépendant | DEARY, Emma C. | Journal of clinical oncology | n°16 | vol.41

As clinical research coordinators (CRCs) working on health outcomes research in patients with hematologic malignancies, we frequently navigate a patient's chart to coordinate study appointments and collect clinical information. Wh...

Discussions about goals of care and advance c...

Article indépendant | MACK, Jennifer W. | Journal of clinical oncology | n°30 | vol.41

PURPOSE: Adolescents and young adults (AYAs) with cancer receive high rates of medically intensive measures at the end of life. This study aimed to characterize the prevalence and timing of conversations about goals of care and ad...

Predictors of posthospital transitions of car...

Article indépendant | LAGE, Daniel E. | Journal of clinical oncology | n°1 | vol.36

Purpose: Patients with advanced cancer experience potentially burdensome transitions of care after hospitalizations. We examined predictors of discharge location and assessed the relationship between discharge location and surviva...

Role of patient coping strategies in understa...

Article indépendant | GREER, Joseph A. | Journal of clinical oncology | n°1 | vol.36

Purpose The early integration of oncology and palliative care (EIPC) improves quality of life (QOL) and mood for patients with advanced cancer. However, the mechanisms by which EIPC benefits these outcomes remain unclear. We there...

Chargement des enrichissements...