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Definitions of palliative care terms : a consensus-oriented decision-making process
Article indépendant
Background: Lack of consistency in palliative care language can serve as barriers when designing, delivering, and accessing high-quality palliative care services.
Objective: To develop a consensus-driven and evidence-based palliative care glossary for the Health Standards Organization Palliative Care Services National Standard of Canada (CAN/HSO 13001:2020).
Design: Content analysis of the Palliative Care Services standard was used to refine a list of terms. Environmental scan and rapid review were used for identification of concepts and definitions. Two meetings of consultation based on the modified Delphi approach took place among a working committee consisting of 12 health care providers, administrators, academics, and patient/family representatives.
Results: Palliative approach to care, quality of life, pain and symptom management, caregivers, palliative care, life-limiting illness, and serious illness were defined by modification/adoption of existing definitions.
Conclusion: A glossary of key palliative care terms was developed and included in the HSO Palliative Care Services standard, which will facilitate communication using consistent language across care settings.
http://dx.doi.org/10.1089/jpm.2020.0679
Voir la revue «JOURNAL OF PALLIATIVE MEDICINE, 24»
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