Factors associated with health professionals decision to initiate paediatric advance care planning : a systematic integrative review

Article indépendant

CARR, Karen | HASSON, Felicity | MCILFATRICK, Sonja | DOWNING, Julia

Background: Advance care planning for children with palliative care needs is an emotionally, legally and complex aspect of care, advocated as beneficial to children, families and health professionals. Evidence suggests healthcare professionals often avoid or delay initiation. An overview of evidence on the factors that influence and impact on the health care professional's initiation of paediatric advance care planning process is lacking. Aim: To review and synthesise evidence on the factors associated with health care professional's decision to initiate paediatric advance care planning. Design: Systematic integrative review using constant comparison method. Data sources: Electronic databases (CINAHL, PubMed, PsycINFO, Ovid MEDLINE, EMBASE, Web of Science and Cochrane) using MeSH terms and word searches in Oct 2019. No limit set on year of publication or country. Grey literature searches were also completed. Results: The search yielded 4153 citations from which 90 full text articles were reviewed. Twenty-one met inclusion criteria consisting of quantitative (n = 8), qualitative (n = 6) and theoretical (n = 7) studies.Findings revealed overarching and interrelated themes 'The timing of initiation', 'What makes an initiator, 'Professionals' perceptions' and 'Prerequisites to initiation'. Conclusions: This review provides insights into the complexities and factors surrounding the initiation of advance care planning in paediatric practice. Uncertainty regarding prognosis, responsibility and unpredictable parental reactions result in inconsistent practice. Future research is required to inform intervention to assist health care professionals when initiating paediatric advance care planning conversations.

https://journals.sagepub.com/doi/10.1177/0269216320983197

Voir la revue «PALLIATIVE MEDICINE, 35»

Autres numéros de la revue «PALLIATIVE MEDICINE»

Consulter en ligne

Suggestions

Du même auteur

Factors associated with health professionals ...

Article | CARR, Karen | PALLIATIVE MEDICINE | n°3 | vol.35

Background: Advance care planning for children with palliative care needs is an emotionally, legally and complex aspect of care, advocated as beneficial to children, families and health professionals. Evidence suggests healthcare ...

Factors associated with health professionals ...

Article indépendant | CARR, Karen | PALLIATIVE MEDICINE | n°3 | vol.35

Background: Advance care planning for children with palliative care needs is an emotionally, legally and complex aspect of care, advocated as beneficial to children, families and health professionals. Evidence suggests healthcare ...

Parents' experiences of initiation of paediat...

Article indépendant | CARR, Karen | European journal of pediatrics

Advance care planning enables parents to discuss their goal and wishes for the future treatment and care of their life-limited or life-threatened child. Whilst research has identified the barriers clinicians face to initiate such ...

De la même série

Posttraumatic growth in palliative care setti...

Article indépendant | AUSTIN, Philip D. | PALLIATIVE MEDICINE | n°2 | vol.38

BACKGROUND: Posttraumatic growth refers to positive psychological change following trauma. However, there is a need to better understand the experience of posttraumatic growth in the palliative care setting as well as the availabi...

The perspectives of people with dementia and ...

Article indépendant | MONNET, Fanny | PALLIATIVE MEDICINE | n°2 | vol.38

BACKGROUND: Advance care planning has been defined in an international consensus paper, supported by the European Association for Palliative Care. There are concerns that this definition may not apply to dementia. Moreover, it is ...

A palliative care goals model for people with...

Article indépendant | NISHIMURA, Mayumi | PALLIATIVE MEDICINE | n°4 | vol.38

BACKGROUND: Advance care planning in dementia includes supporting the person and their family to consider important goals of care. International research reports the importance of psycho-social-spiritual aspects towards end of lif...

Death education interventions for people with...

Article indépendant | WANG, Tong | PALLIATIVE MEDICINE | n°4 | vol.38

BACKGROUND: People with life-threatening diseases and their family caregivers confront psychosocial and spiritual issues caused by the persons' impending death. Reviews of death education interventions in the context of life-threa...

Research methods in palliative care

Article indépendant | DELIENS, Luc | PALLIATIVE MEDICINE | n°6 | vol.38

Research in palliative care is challenging and complex and it uses a range of research designs and research methods, derived from many different scientific disciplines: from medicine and nursing over health sciences, communication...

Chargement des enrichissements...