Caregiving experience and other factors associated with having end-of-life discussions : a cross-sectional study of a general Japanese population

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HANARI, Kyoko | SUGIYAMA, Takehiro | INOUE, Megumi | MAYERS, Thomas | TAMIYA, Nanako

Objectives: To investigate the associations between EOLD and experiences of the death of and/or care for a loved one and other factors. Methods: Data from a nationwide anonymous questionnaire survey of public attitudes toward end-of-life medical care, conducted in December 2017 in Japan, was used. Participants were randomly selected from the general population (age = 20 years), and respondents who completed the questionnaire were analyzed (respondents: n = 836; effective response rate: 13.9%). Respondents were divided into two groups based on their experience of EOLD: those who had engaged in EOLD and those who had not. The main predictors were the experiences of the death of and care for a loved one. Multivariable logistic regression analyses were performed. Results: Of the 836 respondents (male: 55.6%, aged 65 and over: 43.5%), 43.7% reported their engagement in EOLD. In the analyses, “having experiences of caring for a loved one” was associated with EOLD compared with never having experiences of caring (odds ratio 1.88, 95% confidence interval 1.35-2.64). However, having experience of the death of a loved one had no association. Conclusion: For healthcare providers, it may be worth recognizing that the care experience of their patient’s caregiver might affect the caregiver’s own EOLD in the future.

http://dx.doi.org/10.1016/j.jpainsymman.2020.08.010

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