Family caregivers' experiences of caring for advanced cancer patients : a qualitative systematic review and meta-synthesis

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ZHU, Yuxuan | PEI, Xianbo | CHEN, Xiaoli | LI, Tong-Du

Background: Advanced cancers qualify as severe stressors to family caregivers (FCGs), which can negatively impact caregivers' psychological and physical well-being because of their association with high symptom burden, distress, and poor prognosis. Objective: This review aims to synthesize FCGs' experiences of caring for advanced cancer patients using a qualitative systematic review method. Methods: A comprehensive search was conducted in 7 databases from inception until July 2020. Two reviewers independently screened and assessed each study using Joanna Briggs Institute instruments and subsequently undertook the meta-aggregation approach to synthesize findings. Results: A total of 26 studies were included, refined to 37 findings, and integrated into 9 categories and 5 synthesized findings. When a loved one with advanced cancer faced deterioration near the end of their life, FCGs showed a tremendous sense of responsibility for care and concerted great efforts to alleviate their loved one's suffering while lacking effective professional support. Cultural beliefs had a great impact on FCGs' responsibility and role recognition. Ultimately, the caregiving helped FCGs achieve personal transcendence inherent in their unique experience. Conclusons: Caring for advanced cancer patients is a unique, culture-specific experience marked by struggle. Effective professional support, including early palliative care, should be considered to improve the FCGs' experience of caring for advanced cancer patients. Cultural beliefs should be considered to understand and develop appropriate strategies to support FCGs. Implications for practice: Healthcare providers need to ensure that individualized, multifaceted interventions considering FCGs' needs are delivered at the optimal time with the appropriate approach.

http://dx.doi.org/10.1097/NCC.0000000000001104

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