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Life, love, hope, faith, and death : too complex for Likert

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VAUGHAN, Leigh M. | KOFMEHL, Emma L.

More research to examine factors contributing to health-care disparities at the end of life is greatly needed. This article outlines a failed attempt to quantify some of the motivators in medical decision-making for African American families faced with a decision to pursue or forego a percutaneous endoscopic gastrostomy in a loved one at the end of life. It explores the complexities of spirituality, history, culture, and death in our patient population in Charleston, South Carolina, where health-care disparities are well-documented, and distrust has deep historical roots. It outlines the need for qualitative research, where the defining role of the researcher is to practice the paramount palliative skill of listening.

http://dx.doi.org/10.1177/0825859719896872

Voir la revue «JOURNAL OF PALLIATIVE CARE, 35»

Autres numéros de la revue «JOURNAL OF PALLIATIVE CARE»

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