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Palliative care in ALS clinics : a survey of neals consortium membership

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MEHTA, Tejas R. | BAYAT, Elham | GOVINDARAJAN, Raghav

INTRODUCTION: Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative condition managed with a multidisciplinary approach. Palliative care is important for this approach but there is a lack of recommendations for the role and involvement of palliative medicine specialists in multidisciplinary ALS care. METHODS: This questionnaire-based survey assessed the state of palliative care in selective sites which are a part of North East Amyotrophic lateral sclerosis (NEALS) consortium. RESULTS: 27% of the sites included palliative care specialists as a part of their ALS clinics and they were introduced to the patients and family by ALS specialists (75.94%) usually at an advanced stage of ALS. DISCUSSION: Our study when compared with other study results having a similar aim showed that there is a variability in the practice of palliative care specialists in ALS clinics. Having evidence-based guidelines will help in the management of ALS patients more effectively.

http://dx.doi.org/10.1002/mus.27203

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