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The need for a shared understanding : domains of care and composition of team in pediatric palliative care guidelines

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ROST, Michael | DE CLERCQ, Eva | WANGMO, Tenzin | ELGER, Bernice S.

Conceptual confusion is a primary barrier to providing quality palliative care. This study aimed to analyze pediatric palliative care (PPC) guidelines from a conceptual perspective to facilitate a shared understanding of palliative care in pediatrics. Five online databases were searched systematically, in addition to a Google search. Analysis focused on the language used to determine the domains of PPC and on the composition of the PPC team. Guidelines express consensus on 4 core domains: physical, psychological, social, and spiritual care. However, conceptual vagueness exists with respect to the latter 3 because terminology is used inconsistently both within and across guidelines. An inconsistent use of terminology affects the quality of PPC nursing in various ways. Therefore, a shared understanding and unambiguous language must be envisaged. Furthermore, although guidelines agree on the most prominent team members, they do not clearly indicate how these occupational groups should collaborate.

http://journals.lww.com/jhpn/Abstract/2017/12000/The_Need_for_a_Shared_Understanding__Domains_of.11.aspx

Voir la revue «JOURNAL OF HOSPICE AND PALLIATIVE NURSING, 19»

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