Afficher la couverture 'Life, love, hope, faith, and death : too complex for Likert | VAUGHAN, Leigh M.' en grand format
/5

0 avis

Life, love, hope, faith, and death : too complex for Likert

Article indépendant

VAUGHAN, Leigh M. | KOFMEHL, Emma L.

More research to examine factors contributing to health-care disparities at the end of life is greatly needed. This article outlines a failed attempt to quantify some of the motivators in medical decision-making for African American families faced with a decision to pursue or forego a percutaneous endoscopic gastrostomy in a loved one at the end of life. It explores the complexities of spirituality, history, culture, and death in our patient population in Charleston, South Carolina, where health-care disparities are well-documented, and distrust has deep historical roots. It outlines the need for qualitative research, where the defining role of the researcher is to practice the paramount palliative skill of listening.

http://dx.doi.org/10.1177/0825859719896872

Voir la revue «JOURNAL OF PALLIATIVE CARE, 35»

Autres numéros de la revue «JOURNAL OF PALLIATIVE CARE»

Consulter en ligne

Suggestions

Du même auteur

Life, love, hope, faith, and death : too comp...

Article indépendant | VAUGHAN, Leigh M. | JOURNAL OF PALLIATIVE CARE | n°2 | vol.35

More research to examine factors contributing to health-care disparities at the end of life is greatly needed. This article outlines a failed attempt to quantify some of the motivators in medical decision-making for African Americ...

Shared decision making and the role of matern...

Article | VAUGHAN, Leigh M. | Journal of the American College of Surgeons

We explore the spectrum of shared decision making, specifically the idea of maternalism, which combines patient or surrogate preferences and goals with the clinician's responsibility to provide care within the boundaries of accept...

Shared decision making and the role of matern...

Article indépendant | VAUGHAN, Leigh M. | Journal of the American College of Surgeons

We explore the spectrum of shared decision making, specifically the idea of maternalism, which combines patient or surrogate preferences and goals with the clinician's responsibility to provide care within the boundaries of accept...

De la même série

Challenges in the provision of pediatric pall...

Article indépendant | GRUNEBERG, Elena Solveig | JOURNAL OF PALLIATIVE CARE | n°1 | vol.39

Objective: An enormous need for pediatric palliative care (PPC) has been reported, especially in low- and middle-income countries (LMICs). However, the access to PPC is limited. This study identifies the current challenges in the ...

Cultural adaptation and testing of the italia...

Article indépendant | MAGRELLI, Andrea | JOURNAL OF PALLIATIVE CARE | n°1 | vol.39

BACKGROUND: Physiotherapy in Palliative Care (PC) is effective in the management of a series of respiratory, circulatory and motor symptoms, and often has a positive impact on the patient's mood. The Edmonton Functional Assessment...

Dermatological diseases in palliative care pa...

Article indépendant | PALA, Erdal | JOURNAL OF PALLIATIVE CARE | n°1 | vol.39

Objective: Patients receiving palliative care are more prone to dermatological disease. The aim of our study was to determine the frequency of dermatological diseases and associated factors in patients receiving palliative care su...

Reliability and validity of the Chinese versi...

Article indépendant | ZHOU, Yanan | JOURNAL OF PALLIATIVE CARE | n°1 | vol.39

Background: Chinese patients prefer physicians to initiate advance care planning (ACP) conversations, but there is no appropriate tool to evaluate physicians’ ACP self-efficacy level in mainland China. This study aimed to translat...

The Chinese version of the palliative nursing...

Article indépendant | LIU, Qingwei | JOURNAL OF PALLIATIVE CARE | n°1 | vol.39

Background: Nurses play an important role in palliative care, and high-quality assessment tools can help standardize palliative-related nursing behaviors, but there are no such tools in China. Objective: This study aimed to revise...

Chargement des enrichissements...