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Partnering with parents to dismantle "good-death" narratives

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BRODEN, Elizabeth G. | MCCARTHY, Sarah | SNAMAN, Jennifer M.

The notion of a “good death” is pervasive but intensely problematic, especially in pediatrics. This concept arose in the 1970s in response to highly medicalized deaths that neglected considerations of individualized goals of care. Definitions of good death range from simple (eg, free from pain and suffering) to complex (eg, encompassing physical and psychosocial elements alongside systemic considerations).1 Most definitions of a good death rest on ideals such as agency, dignity, clarity, preparation, and completion, which are often inconceivable in the face of a child’s death.

http://dx.doi.org/10.1001/jamapediatrics.2024.0103

Voir la revue «JAMA pediatrics»

Autres numéros de la revue «JAMA pediatrics»

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