Engaging sexual and gender minority older adults to elicit concerns and recommendations for communicating care preferences in long-term care : focus group findings

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CLOYES, Kristin G. | TOWSLEY, Gail L.

Objectives: 1) Describe sexual and gender minority (SGM) older adults’ current practices and concerns for communicating end-of-life (EOL) and daily care preferences in long-term care (LTC); 2) Elicit ideas about adapting a video-based intervention to facilitate communication. Methods: After consulting a community advisory board, we conducted two focus groups with SGM older adults =55 years of age recruited from a community-based service organization (n = 4) and a continuing care retirement community (n = 9). We audio-recorded, transcribed, and coded data using directed content analysis methods and summarized results descriptively. Results: Most participants were cisgender (n = 12), female (n = 11), lesbian (n = 10), White and non-Hispanic (n = 13); mean age was 70.62. Participants’ concerns included discrimination, autonomy, chosen family, and community; they linked daily care preferences with personhood and quality of life. They advocated for building intentional community-based support networks to help peers discuss preferences and produce videos before LTC transition and ensure compliance after. Conclusions: For SGM older adults, asserting and protecting their full personhood, through daily care preferences, is essential to quality of life in LTC.

http://dx.doi.org/10.1080/07317115.2023.2213682

Voir la revue «Clinical gerontologist»

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