Willingness and concerns of transfusion-dependent hematological patients toward the option of home transfusion therapy

Article

BARKI-HARRINGTON, Liza | BARON-EPEL, Orna | SHAULOV, Adir | AKRIA, Luiza | BARSHAY, Yossef | DALLY, Najib | DESHET, Dana | INBAR, Tsofia | KOREN-MICHOWITZ, Maya | LEIBA, Merav | MOSHE, Yakir | SHVIDEL, Lev | TADMOR, Tamar | YAGENAH, Shai | ZEKTSER, Miri | PREIS, Meir | HELLMAN, Ilana | YAHALOM, Vered | AVIV, Ariel

BACKGROUND: One of the main obstacles of providing home-based palliative care to transfusion-dependent hematology patients is the lack of home transfusions services. While healthcare professionals are concerned with safety and cost of home transfusions, the attitude of the patients toward home transfusions are mostly unknown. AIM: To obtain quantitative data regarding the willingness and concerns of transfusion-dependent patients with hematological diseases toward the option of home transfusions. DESIGN: A cross sectional survey including a self-administered questionnaire in one of the three main spoken languages in Israel was administered to patients in 17 hospital hematology outpatient clinics between May 2019 and March 2020. RESULTS: About 52% of 385 patients that participated in the survey preferred home transfusions to hospital transfusions. Gender, age, education, or type of disease were not associated with preference for home transfusions, nor were hospital location or its size. The likelihood to prefer home transfusions was significantly higher among the Hebrew-speakers and those who had not experienced adverse effects previously. The most significant factor associated with preference of home transfusions was a perceived negative effect of hospital-based transfusion on quality of life. The main reason to reject home transfusions was fear of possible adverse effects and concerns over losing contact with the medical staff at the treating hospital. CONCLUSION: These data suggest that a significant portion of transfusion-dependent patients in Israel view home transfusions as a preferred treatment option and that its successful implementation requires maintaining ongoing contact with the treating hospital.

http://dx.doi.org/10.1177/02692163211000634

Voir la revue «PALLIATIVE MEDICINE, 35»

Autres numéros de la revue «PALLIATIVE MEDICINE»

Consulter en ligne

Suggestions

Du même auteur

Willingness and concerns of transfusion-depen...

Article indépendant | BARKI-HARRINGTON, Liza | PALLIATIVE MEDICINE | n°5 | vol.35

BACKGROUND: One of the main obstacles of providing home-based palliative care to transfusion-dependent hematology patients is the lack of home transfusions services. While healthcare professionals are concerned with safety and cos...

Willingness and concerns of transfusion-depen...

Article indépendant | BARKI-HARRINGTON, Liza | PALLIATIVE MEDICINE | n°5 | vol.35

BACKGROUND: One of the main obstacles of providing home-based palliative care to transfusion-dependent hematology patients is the lack of home transfusions services. While healthcare professionals are concerned with safety and cos...

Early integration of palliative care for pati...

Article indépendant | SHAULOV, Adir | British journal of haematology

Early palliative care (EPC) significantly improves quality of life, symptoms, and satisfaction with care for patients with advanced cancer. International organizations have recognized and promoted the role of palliative care as a ...

De la même série

Improving family grief outcomes : a scoping r...

Article | HØEG, Beverley Lim | PALLIATIVE MEDICINE | n°3 | vol.38

BACKGROUND: Experiencing the illness and death of a child is a traumatic experience for the parents and the child's siblings. However, knowledge regarding effective grief interventions targeting the whole family is limited, includ...

Death education interventions for people with...

Article | WANG, Tong | PALLIATIVE MEDICINE | n°4 | vol.38

BACKGROUND: People with life-threatening diseases and their family caregivers confront psychosocial and spiritual issues caused by the persons' impending death. Reviews of death education interventions in the context of life-threa...

Research methods in palliative care

Article | DELIENS, Luc | PALLIATIVE MEDICINE | n°6 | vol.38

Research in palliative care is challenging and complex and it uses a range of research designs and research methods, derived from many different scientific disciplines: from medicine and nursing over health sciences, communication...

What are we planning, exactly? The perspectiv...

Article | BRUUN, Andrea | PALLIATIVE MEDICINE | n°6 | vol.38

BACKGROUND: Deaths of people with intellectual disabilities are often unplanned for and poorly managed. Little is known about how to involve people with intellectual disabilities in end-of-life care planning. AIM: To explore the p...

Face and content validity, acceptability, fea...

Article | NAMISANGO, Eve | PALLIATIVE MEDICINE | n°7 | vol.37

Background: The Children’s Palliative Care Outcome Scale (C-POS) is the first measure developed for children with life-limiting and -threatening illness. It is essential to determine whether the measure addresses what matter...

Chargement des enrichissements...