Disparities in pediatric palliative care : where are we and where do we go from here?

Article indépendant

BOYDEN, Jackelyn Y. | UMARETIYA, Puja J. | D’SOUZA, Louise | JOHNSTON, Emily E.

Nearly 700 000 children in the US are living at any time with a serious illness. Many of these children, along with their families, have extensive unmet needs.1 For example, many children with serious illness experience a high symptom burden, as well as psychological and spiritual distress.2-5 In addition, parents of children with serious illness have higher levels of psychological distress, anxiety, and depression than their peers, as well as worse physical and mental health.6-11 Parents may also miss work or experience loss of employment due to their child's care needs, leading to financial distress.7,12-18 Finally, siblings of children with serious illness report lower health-related quality of life, lower psychological health and self-esteem, and higher rates of healthcare use and physical and mental health diagnoses and prescriptions than their peers.8,19,20 Importantly, children and families from historically marginalized groups (ie, racial and ethnic minoritized, lower socioeconomic status) may experience worse mental and physical health outcomes, including higher symptom burden, lower quality of life, more mental health diagnoses, and greater perceptions of care burden.7,15,21-23

https://www.sciencedirect.com/science/article/pii/S002234762400297X

Voir la revue «The journal of pediatrics, 275»

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