What Can We Learn about Autism from Autistic Persons?

Archive ouverte

Chamak, Brigitte | Bonniau, Béatrice | Jaunay, Emmanuel | Cohen, David

Edité par CCSD ; Karger -

International audience. Background: To date, few studies have focused on the viewpoints of autistic persons themselves despite an increasing number of published autobiographies. The aim of this study is to highlight their personal experiences, and to compare them to scientific and medical knowledge and representations. Method: Adopting an anthropological approach, we analyzed 16 autobiographical writings and 5 interviews with autistic persons. We systematically screened this material and explored the writers' sociodemographic characteristics, cognitive skills and interests with a focus on their sensoryperceptual experiences and their representations of autism. Results: The authors' ages (22-67 years), their countries (n =8) and backgrounds were varied, and most of them were high-functioning individuals with autism or Asperger syndrome. The most striking observations were that all of them pointed out that unusual perceptions and information processing, as well as impairments in emotional regulation, were the core symptoms of autism, whereas the current classifications do not mention them. Conclusions: Our results suggest that what has been selected as major signs by psychiatric nosography is regarded as manifestations induced by perceptive peculiarities and strong emotional reactions by the autistic persons who expressed themselves. These considerations deserve to be taken into account by professionals to better understand the behavior and needs of autistic persons. We propose to include this point in the reflection on the next psychiatric classifications.

Consulter en ligne

Suggestions

Du même auteur

Very early signs of autism reported by parents include many concerns not specific to autism criteria.

Archive ouverte | Guinchat, Vincent | CCSD

This study assessed parents' first concerns about their autistic child. This information was categorized so that it could help healthcare professionals improve early detection of autism. We designed a questionnaire using an open-e...

Autism and social movements in France : exploring cross-cultural differences

Archive ouverte | Chamak, Brigitte | CCSD

At the international level, the study of the historical dynamics of the mobilization of the autistic persons' organizations shows that they refuse the representation of autism as a disease. Generally, the activist movements define...

Trajectories of autistic persons in Quebec

Archive ouverte | Chamak, Brigitte | CCSD

International audience

Chargement des enrichissements...