How good are we at reporting the socioeconomic position, ethnicity, race, religion and main language of research participants? : a review of the quality of reporting in palliative care intervention studies

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SELVAKUMARAN, Keerthika | SLEEMAN, Katherine E. | DAVIES, Joanna M.

There is social inequality in palliative and end-of-life care; people with lower socioeconomic position, from ethnic minorities and from other marginalised groups tend to experience worse care and outcomes towards the end of life, including having higher use of hospital-based care and less access to specialist palliative care.1,2 This pattern is observed across high-income countries and mirrors wider inequalities in health and society.1 Efforts to make palliative and end-of-life care more equitable are gaining traction.2,3 An important task within this equity-driven agenda should be to ensure that palliative care interventions are tested for safety and efficacy across different social groups.4 A lack of diversity in study participants limits the generalisability of evidence and can lead to the implementation of interventions that are ineffective for some groups or that exacerbate existing inequalities.5–7 Good quality reporting is essential for evaluating the diversity of participants. In 2018, a review of 18 clinical trials on the integration of palliative care into oncology, found that one-third did not report the race or ethnicity of participants, and a further one-third provided only broad categorisations such as ‘white’ versus ‘other’.8 The aim of this pragmatic review is to describe the quality of reporting in palliative and end-of-life care intervention studies, for social characteristics including socioeconomic position, ethnicity or race, religion and the main language of participants. [Introduction]

http://dx.doi.org/10.1177/02692163231224154

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