Cancer caregivers at the end-of-life : how much me vs. how much we?

Article indépendant

BYBEE, Sara | HEBDON, Megan | CLOYES, Kristin | HIATT, Shirin | IACOB, Eli | REBLIN, Maija | CLAYTON, Margaret | ELLINGTON, Lee

OBJECTIVE: This study explored cancer caregivers' individual and communal coping through their use of personal and communal pronouns during naturally occurring conversations. METHODS: Nurse-home hospice visits involving cancer patients and their partner caregivers were audio recorded and then transcribed. Pronoun use was analyzed using Linguistic Inquiry Word Count (LIWC) software and descriptive statistics compared patient and partner caregivers' pronoun use. Personal and communal pronoun use was examined within six identified topics of caregiver speech: patient medical care, daily life, emotion, criticism/disagreement, relationships with family/friends, and asserting needs. RESULTS: Dyads (N = 76) had an average of 35.8 years in their relationship. Caregivers used proportionately more first-person singular (I-talk) than first-person plural (we-talk). However, they used significantly less I-talk than patients and less I-talk than LIWC measures in naturally occurring speech. Caregivers were most likely to discuss patient medical care (41.9%) and least likely to discuss their own needs (3.8%). CONCLUSION: Partner caregivers may find it easier to express emotions related to communal stressors, rather than their individual ability to cope with end-of-life caregiving. INNOVATION: Examining personal and communal pronoun use by partner caregivers during nurse-home hospice visits may provide a more objective measure of caregiver coping than standard self-report measures.

http://dx.doi.org/10.1016/j.pecinn.2023.100193

Voir la revue «PEC innovation, 3»

Autres numéros de la revue «PEC innovation»

Consulter en ligne

Suggestions

Du même auteur

Cancer caregivers at the end-of-life : how mu...

Article indépendant | BYBEE, Sara | PEC innovation | vol.3

OBJECTIVE: This study explored cancer caregivers' individual and communal coping through their use of personal and communal pronouns during naturally occurring conversations. METHODS: Nurse-home hospice visits involving cancer pat...

Moderating effect of work on burden and hospi...

Article indépendant | XU, Jiayun | JOURNAL OF PALLIATIVE MEDICINE | n°7 | vol.26

Objective(s): To examine the relationship between caregiver burden and well-being, and the moderating role of employment status (i.e., working, not working). Design, Setting/Subjects: This was a secondary data analysis of baseline...

Exploring communication patterns among hospic...

Article indépendant | CLOYES, Kristin G. | JOURNAL OF HOSPICE AND PALLIATIVE NURSING | n°6 | vol.14

Cette étude fournit un soutien empirique pour de meilleures pratiques de communication et aide les soignants à mieux comprendre comment des voies spécifiques de communication facilitent des résultats positifs en soutenant les prop...

De la même série

Are we offering palliative care and employing...

Article indépendant | KARABELAS-PITTMAN, Sawyer | PEC innovation | vol.6

OBJECTIVE: Perinatal palliative care (PPC) supports families with a fetal diagnosis of a life-limiting condition or who are facing preterm labour at the limits of viability. Shared decision making (SDM) is the gold standard approa...

Perceived acceptability of a prototype toolki...

Article indépendant | OLDE WOLSINK-VAN HARLINGEN, Annet | PEC innovation | vol.6

BACKGROUND: Patients and informal caregivers experience challenges to express their personal perspectives in conversations with healthcare professionals (HCPs). A prototype toolkit, which consists of a hardcopy version and a websi...

How to talk about dying? The development of a...

Article indépendant | FELBER, Sibylle J. | PEC innovation | vol.5

OBJECTIVE: To help healthcare professionals (HCP) act with more confidence when communicating about approaching death, we sought to develop a communication model for HCP to facilitate conversations with dying patients and family c...

Acceptability and usability of the planning a...

Article indépendant | WALSH, Casey A. | PEC innovation | vol.4

OBJECTIVES: Most prior advance care planning (ACP) interventions lack integration of the social context of patients' ACP process, which patients indicate is critically important. The current study developed the Planning Advance Ca...

A conceptual model of the nurse's role as pri...

Article indépendant | WITTENBERG, Elaine | PEC innovation | vol.4

OBJECTIVE: Nurses have opportunities to engage in goals of care conversations that can promote palliative care communication. The purpose of this study was to describe nurses' experiences in goals of care communication as summariz...

Chargement des enrichissements...