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Pediatric palliative care for children with severe neurological impairment and their families

Article

BOGETZ, Jori F. | LEMMON, Monica E.

Up to 40% of patients cared for by pediatric palliative care teams have severe neurologic impairment(SNI). Children with SNI have congenital/chromo-somal, central nervous system static or progressive conditions that result in lifelong cognitive disabilities and developmental delay. These children often have complex care coordination and symptom management needs. Many children with SNI receive care from multiple subspecialists at tertiary pediatric hospitals, homenursing care, and developmental services through school or community programs. Palliative care teams can have a large impact through the ways they support these patients and families psychosocially, symptomatically, spiritually, and emotionally. [Introduction]

http://dx.doi.org/10.1016/j.jpainsymman.2021.01.008

Voir la revue «JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 62»

Autres numéros de la revue «JOURNAL OF PAIN AND SYMPTOM MANAGEMENT»

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