Does it matter who decides? : outcomes of surrogate decision-making for community-dwelling, cognitively impaired older adults near the end of life

Article indépendant

BAUM, Micah Y. | GALLO, Joseph J. | NOLAN, Marie T. | LANGA, Kenneth M. | HALPERN, Scott D. | MACIS, Mario | NICHOLAS, Lauren Hersch

CONTEXT: Cognitively impaired older adults frequently need surrogate decision-making near the end-of-life. It is unknown whether differences in the surrogate's relationship to the decedent are associated with different end-of-life treatment choices. OBJECTIVES: To describe differences in end-of-life care for community dwelling, cognitively impaired older adults when children and spouses are involved in decision-making. METHODS: Retrospective observational study. RESULTS: Among 742 community-dwelling adults with cognitive impairment (mild cognitive impairment or dementia) prior to death, children participated in end-of-life decisions for 615 patients (83%) and spouses participated in decisions for 258 patients (35%), with both children and spouses participating for 131 patients (18%). When controlling for demographic characteristics, decedents with only a spouse decision-maker were less likely to undergo a life-sustaining treatment than decedents with only children decision-makers (p < 0.05). There was no difference in the probability of in-hospital death or burdensome transfers across facilities across decedent-decision-maker relationships. Differences in rates of life-sustaining treatment were greater when we restricted to decedents with dementia. CONCLUSION: Decedents with cognitive impairment or dementia were less likely to receive life-sustaining treatments when spouses versus children were involved with end-of-life treatment decisions but were no less likely to experience other measures of potentially burdensome end-of-life care.

http://dx.doi.org/10.1016/j.jpainsymman.2021.06.009

Voir la revue «JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 62»

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