Continuous palliative sedation until death : the development of a practice protocol for nursing homes

Article indépendant

ROBIJN, Lenzo | GIJSBERTS, Marie-Jose | PYPE, Peter | RIETJENS, Judith | DELIENS, Luc | CHAMBAERE, Kenneth

OBJECTIVES: Challenges inherent in the practice of continuous palliative sedation until death appear to be particularly pervasive in nursing homes. We aimed to develop a protocol to improve the quality of the practice in Belgian nursing homes. METHODS: The development of the protocol was based on the Medical Research Council Framework and made use of the findings of a systematic review of existing improvement initiatives and focus groups with 71 health care professionals [palliative care physicians, general practitioners (GPs), and nursing home staff] identifying perceived barriers to the use of continuous palliative sedation until death in nursing homes. The protocol was then reviewed and refined by another 70 health care professionals (palliative care physicians, geriatricians, GPs, and nursing home staff) through 10 expert panels. RESULTS: The final protocol was signed off by expert panels after 2 consultation rounds in which the remaining issues were ironed out. The protocol encompassed 7 sequential steps and is primarily focused on clarification of the medical and social situation, communication with all care providers involved and with the resident and/or relatives, the organization of care, the actual performance of continuous sedation, and the supporting of relatives and care providers during and after the procedure. Although consistent with existing guidelines, our protocol describes more comprehensively recommendations about coordination and collaboration practices in nursing homes as well as specific matters such as how to communicate with fellow residents and give them the opportunity to say goodbye in some way to the person who is dying. CONCLUSIONS AND IMPLICATIONS: This study succeeded in developing a practice protocol for continuous palliative sedation until death adapted to the specific context of nursing homes. Before implementing it, future research should focus on developing profound implementation strategies and on thoroughly evaluating its effectiveness.

http://dx.doi.org/10.1016/j.jamda.2021.03.008

Voir la revue «Journal of the American Medical Directors Association, 22»

Autres numéros de la revue «Journal of the American Medical Directors Association»

Consulter en ligne

Suggestions

Du même auteur

Continuous palliative sedation until death : ...

Article | ROBIJN, Lenzo | Journal of the American Medical Directors Association | n°8 | vol.22

OBJECTIVES: Challenges inherent in the practice of continuous palliative sedation until death appear to be particularly pervasive in nursing homes. We aimed to develop a protocol to improve the quality of the practice in Belgian n...

Continuous palliative sedation until death : ...

Article indépendant | ROBIJN, Lenzo | Journal of the American Medical Directors Association | n°8 | vol.22

OBJECTIVES: Challenges inherent in the practice of continuous palliative sedation until death appear to be particularly pervasive in nursing homes. We aimed to develop a protocol to improve the quality of the practice in Belgian n...

The involvement of cancer patients in the fou...

Article | ROBIJN, Lenzo | PALLIATIVE MEDICINE | n°7 | vol.32

BACKGROUND: Involving patients in decision-making is considered to be particularly appropriate towards the end of life. Professional guidelines emphasize that the decision to initiate continuous sedation should be made in accordan...

De la même série

Association between multimorbidity and end-of...

Article indépendant | LUO, Shengyu | Journal of the American Medical Directors Association | n°3 | vol.26

OBJECTIVES: Multimorbidity poses significant challenges to the well-being of middle-aged and older adults, but its impact on end-of-life experiences remains relatively underexplored and inconsistent. This study aims to investigate...

Advance directives change frequently in nursi...

Article indépendant | WONG, Hannah J. | Journal of the American Medical Directors Association | n°8 | vol.25

OBJECTIVES: To describe the rate, timing, and pattern of changes in advance directives (ADs) of do not resuscitate (DNR) and do not hospitalize (DNH) orders among new admissions to nursing homes (NHs). DESIGN: A retrospective coho...

Quality of advance care planning in long-term...

Article indépendant | TURCOTTE, Luke | Journal of the American Medical Directors Association | n°11 | vol.25

Objectives: Our primary objective was to determine if more comprehensive advance care planning (ACP) documentation was associated with fewer transfers to hospital in the last year of life. Our secondary objective was to determine ...

Taxonomy of interventions to reduce acute car...

Article indépendant | CETIN-SAHIN, Deniz | Journal of the American Medical Directors Association | n°3 | vol.24

Objective: To develop a taxonomy of interventions aimed at reducing emergency department (ED) transfers and/or hospitalizations from long-term care (LTC) homes. Design: A systematic scoping review. Setting and participants: Perman...

Telehealth palliative care in nursing homes :...

Article indépendant | WALTON, Lyle | Journal of the American Medical Directors Association | n°3 | vol.24

Objectives: Many adults older than 65 spend time in a nursing home (NH) at the end of life where specialist palliative care is limited. However, telehealth may improve access to palliative care services. A review of the literature...

Chargement des enrichissements...