Who enrolls in observational end of life research ? Report from the cultural variations in approaches to end of life study = Qui s'engage pour des recherches sur la fin de vie ? Un rapport à partir des variations culturelles dans les approches d'étude sur la fin de vie

Article indépendant

PHIPPS, Etienne | HARRIS, Diana | BRAITMAN, Leonard E. | TESTER, William | TRUE, Gala | MADISON-THOMPSON, Nora

Une comparaison a été effectuée chez des patients cancéreux et leur entourage pour analyser leurs raisons d'accepter ou de refuser leur participation à des études sur la fin de vie. Les questions posées correspondaient à plusieurs thèmes : bénéfices ou non de participer à ces recherches, satisfaction des patient sur le contrôle de leurs douleurs, relations avec leurs médecins et leur famille. Des tableaux et des statistiques illustrent les résultats ; ils montrent notamment l'absence de corrélation entre la décision des patients et leurs satisfaction par rapport à leur prise en charge, et des douleurs plus importantes chez les patients acceptant d'être inclus dans une étude.

Voir la revue «JOURNAL OF PALLIATIVE MEDICINE, 8»

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