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Developing and using a structured, conversation-based intervention for clarifying values and preferences for end-of-life in the advance care planning-naïve Swedish context : action research within the Döbra research program

Article indépendant

TISHELMAN, Carol | ENESLATT, Malin | MENKIN, Elizabeth | LINDQVIST, Olav

Sweden has no systematic advance care planning (ACP), nor legal recognition of end-of-life proxies. We describe our experiences and reflections from a participatory action research process, aiming at developing and initially using a conversation-based, structured ACP approach among community-dwelling, older adults in Sweden. Eco-mapping and DöBra cards were used with 65 people to catalyze discussions on preferences for the end-of-life. We found great individual variation in both Eco-map depictions of social networks and prioritization of the 37 DöBra card items. The DöBra cards were concluded to be a viable tool for stimulating person-centered conversations on preferences for future end-of-life care.

http://dx.doi.org/10.1080/07481187.2019.1701145

Voir la revue «DEATH STUDIES, 46»

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