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Covid-19 : impact on pediatric palliative care

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SCOTT, Hannah May | COOMBES, Lucy | BRAYBROOK, Debbie | ROACH, Anna | HAROARDOTTIR, Daney | BRISTOWE, Katherine | ELLIS-SMITH, Clare | HIGGINSON, Irene J. | GAO, Wei | BLUEBOND-LANGNER, Myra | FARSIDES, Bobbie | MURTAGH, Fliss Em | FRASE, Lorna K. | HARDING, Richard

Context: Children and young people (CYP) with life-limiting or life-threatening conditions (LLLTC) and their families are potentially vulnerable during COVID-19 lockdowns due to pre-existing high clinical support needs and social participation limitations. Objectives: To explore the impact of the COVID-19 pandemic and lockdowns on this population. Methods: Sub-analysis of an emergent COVID-19 related theme from a larger semi-structured interview study investigating priority pediatric palliative care outcomes. 106 UK-wide purposively-sampled CYP with LLLTC, parent/carers, siblings, health professionals and commissioners. Results: COVID-19 was raised by participants in 12/44 interviews conducted after the UK's first confirmed COVID-19 case. Key themes included loss of vital social support, disruption to services important to families, and additional psychological distress. Conclusions: Continued delivery of child- and family-centred palliative care requires innovative assessment and delivery of psycho-social support. Disruptions within treatment and care providers may compound support needs, requiring co-ordination for families facing multi-agency delays.

https://www.sciencedirect.com/science/article/pii/S0885392422004225

Voir la revue «JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 64»

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