Translation, cultural adaptation and validation of the Chinese version of the carer support needs assessment tool for family caregivers of cancer patients receiving home-based hospice care

Article indépendant

ZHOU, Sijia | ZHAO, Qianqian | WENG, Huimin | WANG, Ning | WU, Xia | LI, Xinxin | ZHANG, Lili

Background: Family caregivers need to be supported in caring for patients at the end of life, but practical tools to assess their support needs have been missing in China. So this study aimed to culturally adapt and validate the Carer Support Needs Assessment Tool (CSNAT). Methods: Cross-cultural adaptation of the original CSNAT for a Chinese setting was performed according to Brislin’s translation guidelines. A pilot study was conducted with 15 Chinese family caregivers of cancer patients receiving hospice home care and 5 medical staff. A cross-sectional survey of 205 family caregivers was conducted from December 2018 to May 2019 at a home-based hospice care institute in Shenzhen, China. The validation procedure comprised the establishment of (1) content validity by a group of six experts; (2) face validity by 15 family caregivers; (3) criterion validity by calculating Spearman’s correlations between the CSNAT and caregiving burden, caregiving preparedness and quality of life scales; (4) internal consistency using Cronbach’s alpha. Results: The CSNAT demonstrated good face validity and good content validity. CSNAT scores showed clear positive correlations with caregiving burden and negative correlations with preparedness for caregiving and quality of life. Internal consistency was high (Cronbach’s alpha = 0.899), although such reliability testing is not recommended for this tool. Conclusions: The Chinese version of the CSNAT is a valid tool that is appropriate for identifying needs of family caregivers of cancer patients in home-based hospice care.

http://dx.doi.org/10.1186/s12904-021-00766-7

Voir la revue «BMC palliative care, 20»

Autres numéros de la revue «BMC palliative care»

Consulter en ligne

Suggestions

Du même auteur

Translation, cultural adaptation and validati...

Article | ZHOU, Sijia | BMC palliative care | n°1 | vol.20

Background: Family caregivers need to be supported in caring for patients at the end of life, but practical tools to assess their support needs have been missing in China. So this study aimed to culturally adapt and validate the C...

Translation, cultural adaptation and validati...

Article indépendant | ZHOU, Sijia | BMC palliative care | n°1 | vol.20

Background: Family caregivers need to be supported in caring for patients at the end of life, but practical tools to assess their support needs have been missing in China. So this study aimed to culturally adapt and validate the C...

“It is not simply the loss of a child&r...

Article | WANG, Ning | DEATH STUDIES | n°3 | vol.45

The death of one’s only child in post-reproductive age (in Chinese, shidu) is a traumatic event that has specific cultural implications in China. This study investigates the experience of a changed life and emerging challeng...

De la même série

Translation, cross-cultural adaptation and va...

Article indépendant | XIE, Zhishan | BMC palliative care | n°1 | vol.24

INTRODUCTION: People diagnosed with cancer are the most frequent users of palliative care. However, there are no specific standards for early identifying patients with palliative care needs in mainland China. The Supportive and Pa...

Validation of the advance care planning engag...

Article indépendant | TAN, Gwendoline Wan Hua | BMC palliative care | n°1 | vol.24

BACKGROUND: Singapore has an ageing population. End-of-life care and advance care planning are becoming increasingly important. To assess advance care planning engagement, valid tools are required. The primary objective of the stu...

A relational approach to co-create advance ca...

Article indépendant | PHENWAN, Tharin | BMC palliative care | n°1 | vol.24

BACKGROUND: Discussing Advance Care Planning (ACP) with people living with dementia (PwD) is challenging due to topic sensitivity, fluctuating mental capacity and symptom of forgetfulness. Given communication difficulties, the pre...

Learning from experience : does providing end...

Article indépendant | MEIER, Clément | BMC palliative care | n°1 | vol.24

BACKGROUND: Despite the critical role of health literacy in utilizing palliative care and engaging in advance care planning, limited research exists on the determinants of end-of-life health literacy. This study investigates the a...

A study protocol for individualized prognosti...

Article indépendant | VAN DEN BESSELAAR, Boyd Noël | BMC palliative care | n°1 | vol.24

BACKGROUND: Head and neck squamous cell cancer (HNSCC) has a poor prognosis, with approximately 25-30% of patients transitioning into the palliative phase at some point. The length of this phase is relatively short, with a median ...

Chargement des enrichissements...