Afficher la couverture 'Severe mental illness and palliative care : patient semistructured interviews | KNIPPENBERG, Inge' en grand format
/5

0 avis

Severe mental illness and palliative care : patient semistructured interviews

Article indépendant

KNIPPENBERG, Inge | ZAGHOULI, Nasira | ENGELS, Yvonne | VISSERS, Kris C. P. | GROOT, Marieke M.

OBJECTIVES: To explore perceptions, experiences and expectations with respect to palliative care of patients with severe mental illness (SMI) and an incurable, life-limiting chronic illness. METHODS: Face-to-face semistructured interviews were conducted with 12 patients (10 of them living in a mental healthcare institution) with severe mental and physical health issues in the Netherlands. A semistructured interview guide was used to elicit perceptions of, experiences with and expectations regarding palliative care. Data were analysed using inductive content analysis. RESULTS: Analysis of the data revealed eight categories: perceptions on health and health issues, coping with illness and symptoms, experiences with and wishes for current healthcare, contact with relatives and coresidents, experiences with end of life of relatives and coresidents, willingness to discuss end of life and death, wishes and expectations regarding one's own end of life and practical aspects relating to matters after death. These categories were clustered into two separate themes: current situation and anticipation of end of life. Interviewees with SMI appeared not accustomed to communicate about end-of-life issues, death and dying due to their life-threatening illness. They tended to discuss only their current situation and, after further exploration of the researcher, the terminal phase of life. They seemed not engaged in their future palliative care planning. CONCLUSIONS: Findings of this study highlight inadequacies in advance care planning for patients with SMI. Results suggest using values, current and near wishes, and needs as a starting point for establishing a gradual discussion concerning goals and preferences for future medical and mental treatment and care.

http://dx.doi.org/10.1136/bmjspcare-2019-002122

Voir la revue «BMJ supportive & palliative care, 13»

Autres numéros de la revue «BMJ supportive & palliative care»

Consulter en ligne

Suggestions

Du même auteur

Severe mental illness and palliative care : p...

Article | KNIPPENBERG, Inge | BMJ supportive & palliative care | n°3 | vol.13

OBJECTIVES: To explore perceptions, experiences and expectations with respect to palliative care of patients with severe mental illness (SMI) and an incurable, life-limiting chronic illness. METHODS: Face-to-face semistructured in...

Severe mental illness and palliative care : p...

Article indépendant | KNIPPENBERG, Inge | BMJ supportive & palliative care | n°3 | vol.13

OBJECTIVES: To explore perceptions, experiences and expectations with respect to palliative care of patients with severe mental illness (SMI) and an incurable, life-limiting chronic illness. METHODS: Face-to-face semistructured in...

Training general practitioners contributes to...

Article | THOONSEN, Bregje | BMJ supportive & palliative care | n°1 | vol.9

Introduction: To support general practitioners (GPs) in providing early palliative care to patients with cancer, chronic obstructive pulmonary disease or heart failure, the RADboud university medical centre indicators for PAlliati...

De la même série

Intersectionality factors and equitable end-o...

Article indépendant | HUDSON, Briony F. | BMJ supportive & palliative care | n°e3 | vol.14

BACKGROUND: Efforts to minimise inequity in palliative and end-of-life care (PEoLC) are well-researched. This is frequently explained by differences related to singular factors. The concept of intersectionality recognises that the...

3d printing in palliative medicine : systemat...

Article indépendant | KERMAVNAR, Tjaša | BMJ supportive & palliative care | n°e3 | vol.14

BACKGROUND: Three-dimensional printing (3DP) enables the production of highly customised, cost-efficient devices in a relatively short time, which can be particularly valuable to clinicians treating patients with palliative care i...

Deep continuous patient-requested sedation un...

Article indépendant | SEREY, Adrien | BMJ supportive & palliative care | n°1 | vol.13

OBJECTIVES: In 2016, a new law was adopted in France granting patients the right, under specific conditions, to continuous deep sedation until death (CDSUD). The goal of this study was to measure the frequency of requests for CDSU...

Rehabilitation medicine in palliative care of...

Article indépendant | NAIR, Krishnan P. S. | BMJ supportive & palliative care | n°2 | vol.13

BACKGROUND: People living with long-term neurological conditions (LTNC) often require palliative care. Rehabilitation medicine specialists often coordinate the long-term care of these patients. OBJECTIVE: The aim of the present re...

Dealing with cultural diversity in palliative...

Article indépendant | SIX, Stefaan | BMJ supportive & palliative care | n°1 | vol.13

Palliative care is increasingly confronted with cultural diversity. This can lead to various problems in practice. In this perspective article, the authors discuss in more detail which issues play a role in culture-sensitive palli...

Chargement des enrichissements...