Challenges in home-based pediatric hospice and palliative care : a case series

Article

JARRELL, Jill Ann | GROSSOEHME, Daniel H. | FRIEBERT, Sarah | AJAYI, Toluwalase A. | THIENPRAYOON, Rachel | HUMPHREY, Lisa

Pediatric home-based hospice and palliative care is a growing and important sub-field within the larger pediatric palliative care landscape. Despite research demonstrating the clinical and systemic efficacy of pediatric home-based hospice and palliative care, there remain barriers to its optimal development, implementation, and dissemination and best clinical practice knowledge gaps. This case series presents specific examples of ubiquitous challenges in pediatric home-based hospice and palliative care in hopes of guiding future research, education, advocacy, and program development efforts.

http://dx.doi.org/10.1016/j.jpainsymman.2024.06.027

Voir la revue «JOURNAL OF PAIN AND SYMPTOM MANAGEMENT»

Autres numéros de la revue «JOURNAL OF PAIN AND SYMPTOM MANAGEMENT»

Consulter en ligne

Suggestions

Du même auteur

Challenges in home-based pediatric hospice an...

Article indépendant | JARRELL, Jill Ann | JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Pediatric home-based hospice and palliative care is a growing and important sub-field within the larger pediatric palliative care landscape. Despite research demonstrating the clinical and systemic efficacy of pediatric home-based...

Principles of pediatric palliative care #405

Article indépendant | THOMAS, Alana | JOURNAL OF PALLIATIVE MEDICINE | n°1 | vol.24

In the United States, >40,000 pediatric deaths occur annually. In addition, complex chronic conditions are common, with 15% of children in the United States living with one or more chronic health condition. Many children with life...

Principles of pediatric palliative care #405

Article indépendant | THOMAS, Alana | JOURNAL OF PALLIATIVE MEDICINE | n°1 | vol.24

In the United States, >40,000 pediatric deaths occur annually. In addition, complex chronic conditions are common, with 15% of children in the United States living with one or more chronic health condition. Many children with life...

De la même série

Cancer pain management in patients receiving ...

Article | TAGAMI, Keita | JOURNAL OF PAIN AND SYMPTOM MANAGEMENT | n°1 | vol.67

CONTEXT: Cancer pain is a common complication that is frequently undertreated in patients with cancer. OBJECTIVES: This study is aimed at assessing the time needed to achieve cancer pain management goals through specialized pallia...

Multilevel determinants of palliative care re...

Article | CHO, Susie | JOURNAL OF PAIN AND SYMPTOM MANAGEMENT | n°1 | vol.67

CONTEXT: Receipt of palliative care (PC) has long been suggested in practice for patients with advanced cancer for improved quality of life, mood, and prolonged survival. However, PC referrals in women with ovarian cancer remain s...

Barriers for adult patients to access palliat...

Article | PITZER, Stefan | JOURNAL OF PAIN AND SYMPTOM MANAGEMENT | n°1 | vol.67

BACKGROUND: Access to palliative care services is variable, and many inpatients do not receive palliative care. An overview of potential barriers could facilitate the development of strategies to overcome factors that impede acces...

Psychometric properties of the Chinese versio...

Article | ZHOU, Xiaojun | JOURNAL OF PAIN AND SYMPTOM MANAGEMENT | n°1 | vol.67

Context: The Functional Assessment of Chronic Illness Therapy-Palliative Care (FACIT-Pal) has been widely used in assessing the quality of life (QOL) of patients with life-limiting illness. However, the Chinese version of the FACI...

Clinical decision support systems for palliat...

Article | DOS SANTOS, Fabiana Cristina | JOURNAL OF PAIN AND SYMPTOM MANAGEMENT | n°2 | vol.66

INTRODUCTION: With the expansion of palliative care services in clinical settings, clinical decision support systems (CDSSs) have become increasingly crucial for assisting bedside nurses and other clinicians in improving the quali...

Chargement des enrichissements...