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Moving on from a “good death” : child- and family-centred end-of-life care in paediatric critical care

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BUTLER, Ashleigh E. | BLOOMER, Melissa J.

For decades, paediatric intensive care unit (PICU) clinicians have aimed to provide a “good death” for children and families [1]. A good death in PICU is thought to occur when the child is free from pain and suffering, and there is a supportive environment for the child and their family [2]. PICU researchers and clinicians commonly describe a good death as one that acknowledges parental and family roles, reciprocal trust between the family and the PICU healthcare team, accessible in- formation, optimal bedside care, compassionate staff, and support for individual child and family child needs [1–3]. However, the notion of the good death in the PICU, and in paediatric care more generally, has been the subject of recent debate, questioning its positionality and appropriateness. [Début de l'article]

https://www.sciencedirect.com/science/article/pii/S0964339724002179

Voir la revue «Intensive and critical care nursing, 86»

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