Co-design use in palliative care intervention development : a systematic review

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GIANNITRAPANI, Karleen F. | LIN, Kendall | MAHETA, Bhagvat | ISENBERG, Sarina R.

CONTEXT: Co-design is a methodology that includes active collaboration between stakeholders in designing solutions and has been used in the development and implementation of palliative care (PC) interventions. OBJECTIVES: To synthesize the state of evidence for co-design in the development of PC interventions. METHODS: We searched PubMed, EMBASE, and CINAHL for peer-reviewed studies published after 1995 that reported evidence of co-designed interventions and outcomes in patients receiving palliative, hospice, or end-of-life care. We screened studies through independent and blinded dual review within Covidence and assessed study quality with the 2018 Mixed Methods Appraisal Tool. We narratively synthesized co-design duration, engagement approach, stakeholders involved, intervention designs, follow-ups, and outcomes, comparing among co-designs reporting meaningful improvement in outcomes. We created a best practice checklist which we used to evaluate co-design use in each study. RESULTS: 1,036 abstracts and 54 full text articles were screened. 28 studies met inclusion criteria and were abstracted. Feedback collection modalities ranged from iterative drafting, pilot testing, advisory panels, workshops, focus groups, and interviews. 13 studies applied pretesting/prototyping through pre-test post-test, focus groups, prototypes, alpha and beta testing, and mock-ups. 11 studies reported improved outcomes, 8 of which utilized iterative co-design. All the studies reporting improved outcomes mentioned meeting with stakeholders at least twice. 2 studies met all criteria in our co-design best practice checklist. CONCLUSION: Co-designed PC interventions demonstrate high variance in the modality of acquiring feedback and application of co-design. Successful co-design leading to improvement in outcomes is achieved by involving patients, caregivers, and providers in iterating intervention design.

http://dx.doi.org/10.1016/j.jpainsymman.2024.06.007

Voir la revue «JOURNAL OF PAIN AND SYMPTOM MANAGEMENT»

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