European Glaucoma Society research priorities for glaucoma care

Archive ouverte

Azuara-Blanco, Augusto | Mccorry, Noleen | Tatham, Andrew J | Georgoulas, Stelios | Founti, Panayiota | Schweitzer, Cedric | Meier-Gibbons, Frances | Denis, Philippe | Tuulonen, Anja | Johannesson, Gauti | Martinez de la Casa, Jose Maria | Prokosch, Verena | Giannoulis, Dimitrios A | Abegao Pinto, Luis | Garway-Heath, David | Topouzis, Fotis

Edité par CCSD ; BMJ Publishing Group -

International audience. BACKGROUND/AIMS: The goal of health research is to improve patients care and outcomes. Thus, it is essential that research addresses questions that are important to patients and clinicians. The aim of this study was to develop a list of priorities for glaucoma research involving stakeholders from different countries in Europe. METHODS: We used a three-phase method, including a two-round electronic Delphi survey and a workshop. The clinician and patient electronic surveys were conducted in parallel and independently. For phase I, the survey was distributed to patients from 27 European countries in 6 different languages, and to European Glaucoma Society members, ophthalmologists with expertise in glaucoma care, asking to name up to five research priorities. During phase II, participants were asked to rank the questions identified in phase I using a Likert scale. Phase III was a 1 day workshop with patients and clinicians. The purpose was to make decisions about the 10 most important research priorities using the top 20 priorities identified by patients and clinicians. RESULTS: In phase I, 308 patients and 150 clinicians were involved. In phase II, the highest-ranking priority for both patients and clinicians was 'treatments to restore vision'. In phase III, eight patients and four clinicians were involved. The top three priorities were 'treatments to stop sight loss', 'treatments to restore vision' and 'improved detection of worsening glaucoma'. CONCLUSION: We have developed a list of priorities for glaucoma research involving clinicians and patients from different European countries that will help guide research efforts and investment.

Suggestions

Du même auteur

Systemic and Ocular Determinants of Peripapillary Retinal Nerve Fiber Layer Thickness Measurements in the European Eye Epidemiology (E3) Population

Archive ouverte | Breteler, Monique | CCSD

International audience. PURPOSE:To investigate systemic and ocular determinants of peripapillary retinal nerve fiber layer thickness (pRNFLT) in the European population.DESIGN:Cross-sectional meta-analysis.PARTICIPA...

The Decreasing Prevalence of Nonrefractive Visual Impairment in Older Europeans

Archive ouverte | Delcourt, Cécile | CCSD

Authors are on the European Eye Epidemiology (E3) Consortium. Presented at: Association for Research in Vision and Ophthalmology Annual Meeting, May 2014, Orlando, Florida (United States). Manuscript no. 2017-1933. Supplemental ma...

Genetic association study of exfoliation syndrome identifies a protective rare variant at LOXL1 and five new susceptibility loci

Archive ouverte | Aung, Tin, P | CCSD

International audience. Exfoliation syndrome (XFS) is the commonest known risk factor for secondary glaucoma and a significant cause of blindness worldwide. Variants in two genes, LOXL1 and CACNA1A have been previou...

Chargement des enrichissements...