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One voice for anaphylaxis in France: The vision of the centre of reference in rare diseases
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International audience. In October 2016, the French Minister of Health launched a call for new Centers of Reference in Rare Diseases (CRRD). In order to supportquality clinical practice, prevention and research for patients presenting severe anaphylaxis, together with 15 French public health institutions(Competence Centers in Rare Diseases–CCRD), we submitted a proposal named ANAFIL. French data suggest that fewer than 30,000 peopleare affected by severe anaphylaxis, with 9.2 per 100,000 person-years based on data from the University Hospital of Montpellier. Cumulativeincidence is an inadequate measurement here, since the reaction is no longer active once the episode is resolved and one patient can presentdifferent episodes of anaphylactic reactions. Covering 7 of 12 administrative regions in France, all 16 centres making up the ANAFIL networkare linked to academic activities, supported by medical and patient associations. Given that anaphylaxis is considered a public health issue by theglobal allergy community, the ANAFIL proposal provides a key window of opportunity for the construction of a solid academic French consortiumthat will redress implementation gaps in the field.
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