Adequacy of care management of patients with polyhandicap in the French health system: A study of 782 patients

Archive ouverte

Rousseau, Marie-Christine | Billette de Villemeur, Thierry | Khaldi-Cherif, Sherezad | Brisse, Catherine | Felce, Agnès | Baumstarck, Karine | Auquier, Pascal

Edité par CCSD ; Public Library of Science -

on behalf of the French Polyhandicap Group. International audience. Background: The aims of this study were 1) to describe the health profiles and care management of polyhandicapped patients according to 2 modalities, specialized rehabilitation centers (SRC) and residential facilities (RF), and 2) to estimate the adequacy of care management of these patients.Methods: This was an 18-month cross-sectional study including patients with a combination of severe motor deficiency and profound intellectual impairment. The patients were from 4 SRC and 9 RF. The following data were collected: sociodemographics, health status, care management, and adequacy of care management.Results: A total of 782 patients were included: 410 (52%) were cared for in SRC and 372 (48%) in RF. Global objective adequacy (health severity and age category) was higher for patients cared for in SRC compared with patients cared for in RF (57 vs. 44%, p< = 10−3). Global subjective adequacy (self-perception of the referring physician and request of change in structure) was higher for patients cared for in SRC in comparison with patients cared for in RF (98 vs. 92%, p< = 10−3).Conclusions: This study provides key elements of adequacy of care management modalities for polyhandicapped patients in France.

• Description
• Sujet/Public
• Outil
• Outil d'anticipation
• Mémoire et thèse
• Gestion