Pediatric palliative care nursing

Article indépendant

AKARD, Terrah Foster | HENDRICKS-FERGUSON, Verna L. | GILMER, Mary Jo

Palliative care is patient- and family-centered care that enhances quality of life throughout the illness trajectory and can ease the symptoms, discomfort, and stress for children living with life-threatening conditions and their families. This paper aims to increase nurses' and other healthcare providers' awareness of selected recent research initiatives aimed at enhancing life and decreasing suffering for these children and their families. Topics were selected based on identified gaps in the pediatric palliative care literature. Published articles and authors' ongoing research were used to describe selected components of pediatric palliative nursing care including (I) examples of interventions (legacy and animal-assisted interventions); (II) international studies (parent-sibling bereavement, continuing bonds in Ecuador, and circumstances surrounding deaths in Honduras); (III) recruitment methods; (IV) communication among pediatric patients, their parents, and the healthcare team; (V) training in pediatric palliative care; (VI) nursing education; and (VII) nurses' role in supporting the community. Nurses are in ideal roles to provide pediatric palliative care at the bedside, serve as leaders to advance the science of pediatric palliative care, and support the community.

http://apm.amegroups.com/article/view/20026/19852

Voir la revue «Annals of palliative medicine, 8»

Autres numéros de la revue «Annals of palliative medicine»

Consulter en ligne

Suggestions

Du même auteur

Research cooperative groups in pediatric pall...

Article | AKARD, Terrah Foster | Palliative medicine reports | n°1 | vol.1

Research cooperative groups aim to facilitate collaborative and rigorous palliative care research. The purpose of this article is to (1) demonstrate how cooperative groups are taking formal and sustainable steps with commitment to...

Research cooperative groups in pediatric pall...

Article indépendant | AKARD, Terrah Foster | Palliative medicine reports | n°1 | vol.1

Research cooperative groups aim to facilitate collaborative and rigorous palliative care research. The purpose of this article is to (1) demonstrate how cooperative groups are taking formal and sustainable steps with commitment to...

Research cooperative groups in pediatric pall...

Article indépendant | AKARD, Terrah Foster | Palliative medicine reports | n°1 | vol.1

Research cooperative groups aim to facilitate collaborative and rigorous palliative care research. The purpose of this article is to (1) demonstrate how cooperative groups are taking formal and sustainable steps with commitment to...

De la même série

Preparing for death : a survey on rituals in ...

Article indépendant | THIESBONENKAMP-MAAG, Julia | Annals of palliative medicine | n°1 | vol.14

BACKGROUND: In the majority of cultures, death is accompanied by a series of rituals that assist the bereaved in coping with this significant transition. However, there is a paucity of empirical literature on the organisation of s...

Subcutaneous dexmedetomidine for sedation of ...

Article indépendant | LAPENSKIE, Julie | Annals of palliative medicine | n°1 | vol.14

BACKGROUND: Agitated delirium frequently poses management challenges in palliative care. Interventions are needed to manage delirium yet allow meaningful end-of-life communication. Dexmedetomidine can provide wakeful sedation and ...

Caregiver needs in end-of-life care are diver...

Article indépendant | KOO, Alice | Annals of palliative medicine | n°2 | vol.14

BACKGROUND AND OBJECTIVE: Informal caregivers are essential to home-based end-of-life (EOL) care. However, their needs are often not well-understood and described in relation to caregiving, rather than with a 'caregiver-centric' p...

The value and economic benefits of palliative...

Article indépendant | PASTRANA, Tania | Annals of palliative medicine | n°2 | vol.13

This editorial highlights the rationale for primary care delivering palliative care (Box 1) (1): palliative care can reach all those in need if integrated in primary care services; primary care can identify people much earlier in ...

Psychiatry and interdisciplinary pediatric pa...

Article indépendant | CRESS, Alison E. | Annals of palliative medicine | n°2 | vol.13

BACKGROUND: Current literature highlights the need for psychological support of adolescents and young adults (AYAs) with serious illness, for which pediatric palliative care (PPC) teams are often responsible. This scoping review a...

Chargement des enrichissements...