Siblings’ voices : a prospective investigation of experiences with a dying child

Article

RUSSELL, Ceilidh Eaton | WIDGER, Kimberley | BEAUNE, Laura | NEVILLE, Alexandra | CADELL, Susan | STEELE, Rose | RAPOPORT, Adam | RUGG, Maria | BARRERA, Maru

Sibling relationships reflect a unique childhood bond, thus the impact on a sibling when a child is seriously ill or dying is profound. We conducted a prospective, longitudinal, qualitative study over 2 years using interpretive descriptive methodology to understand siblings’ perspectives when a brother or sister was dying at home or in hospital. The insights from the 10 siblings revealed complex experiences, both personal and with the ill child, their families, and peers. These experiences were paradoxically sources of strain and of support, revealing the importance of validation and normalization in assisting siblings to successfully navigate the experience.

http://dx.doi.org/10.1080/07481187.2017.1334009

Voir la revue «DEATH STUDIES, 42»

Autres numéros de la revue «DEATH STUDIES»

Consulter en ligne

Suggestions

Du même auteur

Siblings’ voices : a prospective invest...

Article indépendant | RUSSELL, Ceilidh Eaton | DEATH STUDIES | n°3 | vol.42

Sibling relationships reflect a unique childhood bond, thus the impact on a sibling when a child is seriously ill or dying is profound. We conducted a prospective, longitudinal, qualitative study over 2 years using interpretive de...

Siblings’ voices : a prospective investigatio...

Article indépendant | RUSSELL, Ceilidh Eaton | DEATH STUDIES | n°3 | vol.42

Sibling relationships reflect a unique childhood bond, thus the impact on a sibling when a child is seriously ill or dying is profound. We conducted a prospective, longitudinal, qualitative study over 2 years using interpretive de...

Pediatric Patients Receiving Palliative Care ...

Article indépendant | WIDGER, Kimberley | Archives of Pediatrics and Adolescent Medicine | vol.161

Cette étude a pour objectif de décrire les patients ayant bénéficié d'un des 8 programmes de soins palliatifs pédiatriques au Canada en 2002, et d'estimer le nombre d'enfants qui auraient pu bénéficier de ce programme mais n'ont p...

De la même série

Newspaper coverage of advance care planning d...

Article | VAN DER SMISSEN, Doris | DEATH STUDIES | n°1 | vol.48

COVID-19 may cause sudden serious illness, and relatives having to act on patients’behalf,emphasizing the relevance of advance care planning (ACP). We explored how ACP was por-trayed in newspapers during year one of the pand...

End-of-life treatment preferences and advance...

Article | BARNETT, Michael D. | DEATH STUDIES | n°2 | vol.48

End-of-life treatment preferences (EOLTPs) refer to the amount of medical intervention an individual would wish to receive in a life-threatening scenario. This study aimed to investigate relationships between older adults’ E...

A systematic review of the relationship betwe...

Article | SIMS, Melissa A. | DEATH STUDIES | n°1 | vol.48

This systematic review aimed to examine the relationship between death anxiety and suicidality in adults, and the impact of death anxiety interventions on the capability for suicide and suicidality. MEDLINE, PsycINFO, PubMed, and ...

Prolonged grief disorder : a bibliometric ana...

Article | KOUKOPOULOS, Anastasios | DEATH STUDIES | n°2 | vol.48

Prolonged Grief Disorder (PGD) has become a subject of increased interest among both researchers and practitioners, owing both to its recent inclusion in the DSM-5-TR and the growing evidence of widespread complications of bereave...

Factors associated with grief in informal car...

Article | TRUCCO, Ana Paula | DEATH STUDIES | n°2 | vol.48

The purpose of this mixed methods systematic review was to identify factors associated with anticipatory grief, post-death grief, and prolonged grief in informal carers of people living with Motor Neuron Disease (MND) to inform fu...

Chargement des enrichissements...