Experiences of relatives with outpatient palliative care : a cross-sectional study

Article indépendant

FRINGER, André | STANGLE, Sabrina | BISCHOFBERGER, Iren | BUCHE, Daniel | PRAXMARER, Renate | CH. OTT, Stefan | SCHNEPP, Wilfried

Aim: The authors aimed to evaluate the experiences of the relatives of dying people, both in regard to benefits and special needs, when supported by a mobile palliative care bridging service (MPCBS), which exists to enable dying people to stay at home and to support patients' relatives. Design: A cross-sectional survey. Methods: A standardised survey was performed, asking 106 relatives of dying people about their experiences with the MPCBS (response rate=47.3%). Descriptive statistics were analysed using SPSS 23. Findings: Many relatives (62.5%) reported that their dying relations when discharged from a facility to stay at home were not symptom-free. The MPCBS helped relatives maintain home care, and this was reported to be helpful. Support provided by the MPCBS made it easier for 77.6% of relatives to adjust care as soon as situations changed, and helped ensure that symptoms could be better controlled, at least for 68.2% of relatives. Younger relatives felt more encouraged by the MPCBS to care for their relatives dying at home.

http://dx.doi.org/10.12968/ijpn.2020.26.5.230

Voir la revue «International Journal of Palliative Nursing, 26»

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