How to enhance advance care planning research?

Article

DE VLEMINCK, Aline | VAN DEN BLOCK, Lieve

Since the first programs and large-scale studies more than 30 years ago, advance care planning and particularly the use of advance directives have been subject of considerable debate. The recent discourse of the debate centers around the uncertain effect of advance care planning on aligning end-of-life care with patient care goals (“goal-concordant care”), leading some colleagues to suggest omitting advance care planning research and practice altogether.1 This has led to many reactions by colleagues from all over the world about the value and need for advance care planning2 and has sharpened the debate around the central goal of ACP as a means to ensure that persons with a serious illness receive care at the end of life that is concordant with their preferences. In this editorial, we will not repeat this debate, nor do we intend to criticize or devalue the ACP research undertaken in the past. Instead, we aim to outline options for future research to move the field forward, and this by focusing on two questions, inspired by Chalmers and Glasziou’s3 framework on research waste which they defined as the inefficient use of recourses in the production and reporting of research. To ensure future ACP research is of benefit to patients and families the following two questions on the production stages of research appear critical: (1) which questions relevant to patients and caregivers have been insufficiently addressed in ACP research? and (2) which research design and methods can bring such insights? [Début de l'éditorial]

https://journals.sagepub.com/doi/full/10.1177/02692163231170658

Voir la revue «PALLIATIVE MEDICINE, 37»

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