Feeding the family : cultural humility in bereavement care

Article indépendant

MADNI, Arshia | PORTER, Amy S. | CROOK, Katie | CARTWRIGHT, Carla | HAKIM, Hana

Sara and Ali’s only son, Musa, was diagnosed with acute myelogenous leukemia at an academic hospital in the United Arab Emirates. Despite chemotherapy and subsequent bone marrow transplant, Musa’s prognosis was grave: the aggressive cancer left him with only months to live. Physicians themselves, Sara and Ali knew that the best chance of cure for their son was experimental treatments in the United States. Leaving their support network, their jobs, and their home, Sara, Ali, and Musa traveled across continents seeking survival. Months later and just days before Ramadan began, Musa died peacefully in a hospital room in the United States, thousands of miles away from home, surrounded by his parents, grandparents, and younger sister. (All identifying information, including name, family structure, country of origin, diagnosis, and life events, have been changed, so that the patient and family are not identifiable based on the information included in this article.)

http://dx.doi.org/10.1542/peds.2021-055874

Voir la revue «Pediatrics, 150»

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